Goals

• To create awareness of microtia to the Malaysian society.
  
• Provide a platform for those born with microtia and related conditions to share their experiences for better understanding.
  
• Build interaction with medical providers for continuous and improved management.
  
• Provide assistance in the form of information and direction for new parents whose child is born with microtia.

Local Activities Organized - for upcoming talk/seminars/activities, check the Message Board.

15th March 2003 - Public Forum on Microtia - Total Ear Reconstruction by Dr Charles Lee, Consultant Plastic, Cosmetic & Reconstructive Surgeon from the Sabah Medical Center.

9th March 2002 - Meeting with Prof Dr Aili Hanim, a Consultant Psychiatrist with UMMC, Petaling Jaya, who spoke on stress and childhood depression. Having a child with 'less' than the normal
physical attributes such as two eyes, two ears and so on, can lead to a lot of mental disharmony with oneself and the immediate family. Sooner or later it bears heavily down on the affected child too.

5th February 2002 - Meeting with craniofacial surgeon Dr David David who is a resident surgeon with the Children's Hospital in Adelaide. His presentation was on facial deformity, a condition related to microtia. It's medically termed as Hemifacial Microsomia.

8th & 9th December 2001 - Took part in a social development fair where a booth was set up with the assistance of Prof Dr Lokman Saim an Otolaryngologist from HUKM, Cheras.

13th October 2001 - Informal support group meeting in a member's house. The gathering allowed the children to mingle whilst the adults exchanged notes on their children's progress.

22nd July 2001 - A scientific presentation on the Management of Ear Canal Atresia/ Microtia by Prof.Dr Lokman Saim in HUKM, Cheras.

1st July 2001 - The inception of the Microtia Support Group.

The first meeting took place at Mrs. Chelvi's residence with five other parents and their families attending. Meeting one another for the first time, the children got to see their 'counterparts'. Rather refreshing as they, the children, realized that there were others like them. Parents were able to share experiences about the doctors and how each of them went about managing this situation.

Click for Membership Form